We have been home for a little over a week and are starting to get used to our new normal.
We use Emerson's PICC line to give her meds at 7am, 3pm, and 11pm. The trickiest part is having the meds set out for 1 hour prior to giving it. We have lots of alarms set so we don't forget. The home health lady comes on Monday's to switch out her bandages on the PICC line. She also takes blood for labs when she comes.
The wound vac is on all the time. The dressing on it is changed on Tuesday's. Last Tuesday she went to the Bothwell Wound Center to have that done. The bandage covers her back and it is very painful to have it removed. We are hoping to get rid of that next week.
Overall, Emerson feels great! She hates the big antibiotic pills she has to take, and getting any bandage taken off, but she feels good. When she isn't home with Mom or Dad, she has been going to daycare with Jenson where there is only a couple kids and she really enjoys getting out of the house.
Thank you to everyone that has reached out, prayed, brought a meal, sent cards/gifts, donated sanitizer/wipes, and helped with Addison, Jenson, and Wilmer. We couldn't do this without you.
Tomorrow she has a follow up with Dr. Luhmann and her infectious disease doctor. We are praying for good results.