Thursday, July 9, 2020

Halfway

Unicorn hat and chain for countdown.

Unicorn hat
Emerson's hospital stay is halfway over!  She is really missing her family, but is in no pain and the doctors say everything is looking good. 
She has learned to swallow a pill, which will be very helpful after her surgery.
She continues to walk on the treadmill, stretch, do yoga, and eat to get stronger and healthier. 
She does breathing exercises four times a day and her lungs continue to improve.
She is still at the 16 pounds during the day and 8 at night.
Surgery is still planned for July 21.  That will include removing the halo, removing one vertebrae and fusing two together as well as inserting new rods called shilla rods.
She loves call her cards and packages!

Here are some older photos that haven't been shared yet...
Prayer service before the first surgery.

Sticker Art

Fireworks and popcorn

More fireworks from bed.  This shows the bed traction too.
Riley had surgery the same day by the same doctor.  We thought that was pretty cool.  

Saturday, July 4, 2020

4th of July


Trying to make the best of the 4th.

Em met her goal weight!  She is at 16 pounds of weights.  Thursday she had her weekly x-ray and photos and a pulmonary test.  As far as we know all is good.

Talking to her sisters.  She sure misses them.

Awesome color changing light in her room.

We are still trying to get the bandage off.  

Bulking up in Occupational Therapy.  

Making slime in Recreational Therapy.

Pulmonary Test

No hands!
Floating (eek!)


They had a nice BBQ for the 4th



Tuesday, June 30, 2020

Week 2 Halo

Craig hung out with Em for a couple days.  It's pretty quiet on the weekends.  No therapy.  They filled their time with movies, videogames, and crafts. 

Monday her bandage on her back was removed.  That's very painful on her sensitive skin so we are glad it's over with.  Craig said it took an hour. 
Their is a section of gauze that got stuck to the glue on her incision.  It should come off eventually.  She had her first shower yesterday.  Pin care is going much better.  She is enjoying her cards and gifts! 
Thank you!

My view

She loves her cards!

Bingo!

Friday, June 26, 2020

Halo Day 3/4

It's been a busy couple days!  Now that she is off pain meds and comfortable the goals are to get stronger, taller and gain some weight.  She has occupational therapy twice a week and physical therapy twice a day, plus breathing exercises 4 times a day.  They also have a recreational room with tons of activities to keep the kids busy.  
She is sleeping much better.  Her weight is 9 pounds so far.  We get a pound more every day.   She has received some cards and fun packages and gets so excited!

 






Wednesday, June 24, 2020

Day 2 Halo

Em had a better day today.  She got her walker, which she loves!  She walked on the treadmill for 15 minutes in the morning and 20 in the afternoon.  Her weight is 7 pounds.  There is another young girl here in a halo and they are enjoying each other’s company.  
Her only struggles at this point are missing her sisters and cleaning the pin sites.  They have to be cleaned daily and it stings.  It’s terrible.  

Tuesday, June 23, 2020

Day 1 Halo

Emerson had a rough night and morning.  She is out of traction to eat lunch and says she feels much better. 
Visitors are still not allowed but if anyone would like to send her a card her address is
Emerson Poe - Inpatient
Shriner's Hospital
4400 Clayton Ave.
St. Louis, MO 63110
💚

Monday, June 22, 2020

Magec Removal & Halo

Surgery went well today.  They attached her halo and removed her Magec rod.  She is struggling with nausea and has been given more meds to help.

We appreciate all the support!