Emerson's Scoliosis Journey

Shoulder doctor: We haven't shared this with everyone, but in August at the follow up for the original surgery we found out Em's limited left arm motion is due to her shoulder blade being in the wrong spot. It will require surgery to improve the motion from about 45 degrees to hopefully 100 degrees.  They are hoping to do this surgery along with a future back surgery and it isn't time sensitive.  No new information today. Back doctor:  Wound vac tape removal was horrible.  Her back looks amazing and she graduated from the wound vac a week early.  She was released to take a shower/bath and go back to school. All great news! Next appointment is in April unless we notice anything alarming. Infectious disease doctor: She isn't having any reactions to the meds which is good.  She has a couple things in her blood labs that are low.  Hemoglobin was one of them.  He isn't concerned and wants to continue with the PICC line for at least 2 more weeks, most l...

We have been home for a little over a week and are starting to get used to our new normal.   We use Emerson's PICC line to give her meds at 7am, 3pm, and 11pm.  The trickiest part is having the meds set out for 1 hour prior to giving it.  We have lots of alarms set so we don't forget.  The home health lady comes on Monday's to switch out her bandages on the PICC line.  She also takes blood for labs when she comes. The wound vac is on all the time.  The dressing on it is changed on Tuesday's.  Last Tuesday she went to the Bothwell Wound Center to have that done.  The bandage covers her back and it is very painful to have it removed.  We are hoping to get rid of that next week.   Overall, Emerson feels great!  She hates the big antibiotic pills she has to take, and getting any bandage taken off, but she feels good.  When she isn't home with Mom or Dad, she has been going to daycare with Jenson where there is only a coup...