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6 Month Check Up - 1 year after last surgery

 On Tuesday we made the trip to St. Louis to visit Dr. Luhmann.  We have been making many trips that direction lately because he is also treating Addison for her back injury. 

Emerson had pictures and x-rays taken first. She has been very interested in the history of x-rays recently because she has been learning about Marie Curie, the inventor of the mobile x-ray. That makes it fun!

Then we met with Dr. Luhmann.  He told us that her spine is not allowing the rods to do their job and it has decided to bubble to the side.  This can be stopped with more permanent rods, however her age and size are not good for that.  Once he fuses with permanent rods she would stop growing.  He is still considering whether to wait and do one final fusion or more smaller fusions - she has had one so far. He seemed baffled. He plans to take a closer look at her past x-rays and come up with a plan.  

Right now she is feeling good, so we are going to continue with what she is doing and trust that the best plan will come.  

Please join us in praying for:

  • Dr. Luhmann to make a perfect plan for Em
  • Her spine to continue to grow but in the right direction
  • Her lungs to have room to function
  • Overall growth for Em's body 

 


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