Emerson's Scoliosis Journey

Emerson's appointments went well on Tuesday.   Dr. Luhmann (Spine) Her x-rays looked good and he is pleased that the bottom of the right rod has stayed the same and is not poking out anymore.  He wants to wait as long as possible before addressing the other vertebrae that need removed/fused and the shoulder.  We are supposed to watch the pokey rod closely and call if anything looks wrong.   Dr. Reich (Infectious Disease) No blood draw!  She has also completed 6 months of antibiotic. It is possible an infection will surface, though they don't think it will. While watching and waiting, we are supposed to keep her healthy, active, and continue to encourage weight gain. Prayers: No infections show up Bottom rod doesn't irritate skin Rods and screws stay put Weight gain No illness

When Emerson was in the hospital she received so much mail!  There were over 80 cards, many multiples from people that sent something every week (every day for Grandma Alma).  Mail was so exciting for her and uplifting for me.  We have received and sent some other important mail recently.    Poster We ordered this awesome poster from Higgy Bears.  It is full of pictures of other kids with scoliosis.  She is also on it! Donor Letter Sending a donor letter is hard and though it took me a while, we got one sent and hope it said the right things.   Dr. Luhmann Emerson emailed this to Dr. Luhmann recently and he decided to add it to his blog .   Her next appointment is April 27th.  She will meet with her infectious disease doctor and spine surgeon.  We hope to get good blood results and good x-rays.  We are still nervous about the rod poking her skin a little bit and plan to make a decision about that based on how they feel about possible infection and future surgeries.